COVID-19 Resources

**After consulting with our physician experts, community leaders, participating panelists, attendees, meeting sponsors, and vendors, we have decided to postpone our 2020 MDA Clinical & Scientific Conference scheduled for March 22–25, 2020, at the Walt Disney World Dolphin Resort in Orlando, Florida, due to concerns over the Coronavirus凯时手机版app. Please stay tuned for further updates.

 

COVID-19 Recommendations for the Neuromuscular Community

Current guidelines for COVID-19 exposure have focused on specific communities related to risk to travelers, the elderly and those with conditions that affect respiratory health. In order to inform the neuromuscular community of specific information which is relevant to COVID-19, MDA has prepared the following information which expands on the CDC recommendations for the general population in order to keep the neuromuscular community up to date on best practices for managing the global spread of SARS-CoV-2.

A few general points will help patients and families to have a better understanding of the current situation:

  • 凯时手机版app About COVID-19

    The new virus is called SARS-CoV-2, which is part of the family of betacoronaviruses that are common in people and various animals, including camels, cattle, cats, and bats. The original spread from live animal markets in China has now continued with person to person transmission leading to global spread which is evolving rapidly. The disease caused by SARS-CoV-2 is now known as COVID-19.

    凯时手机版appThe virus is spread from 1) person-to-person exposure (principal means of transmission) and 2) surfaces exposed to the virus. Exposure is by respiratory droplets produced when an infected person coughs or sneezes leading to transmission to others in close proximity. A challenge is that some transmission can occur before an infected individual becomes ill making it hard to isolate that individual. The highest risk of spreading is from those that have symptoms of fever and respiratory illness. Late in the illness there is the potential for gastrointestinal infection and exposure from stool. Spreading from infected surfaces can be managed by careful handwashing (see below).

  • 凯时手机版app Symptoms

    Symptoms may appear 2-14 days after exposure. Findings compatible with SARS-CoV-2 infection include fever, cough, and/or difficulty breathing.

  • What to do if you are sick?

    For neuromuscular disease patients, it is important that you seek prompt medical attention if you or anyone in your household is identified with symptoms consistent with COVID-19 or for documented exposure to an individual who has tested positive. Before seeking care, you should contact your healthcare provider and tell them that you have symptoms consistent with COVID-19 or have been exposed to someone who has or is being evaluated for COVID-19. It is important to notify your healthcare provider of your symptoms and potential exposure prior to entering a healthcare provider’s office to ensure proper precautions can be taken to help keep other people in the office or waiting room from getting infected or exposed.

    Contact your healthcare provider or health department to see if you should be tested. Your healthcare provider will provide guidance for having your symptoms evaluated and monitored.

    凯时手机版appIf you have a medical emergency and need to call 911, notify the dispatch personnel that you or a member of your household has, or is being evaluated for SARS-CoV-2. You should go to an Emergency Room or Urgent Care facility if you are having shortness of breath or experiencing worsening symptoms. It is important that you call ahead to the facility and notify them if you or a member of your household has or is being evaluated for SARS-CoV-2.

    凯时手机版appThe CDC has developed guidelines to

  • Prevention and Management

    There is currently no preventative vaccine or specific treatment for COVID-19. The best way to prevent illness is to avoid being exposed to the virus. However, as a reminder, CDC always recommends everyday preventive actions to help prevent the spread of respiratory diseases, including:

    • Avoid close contact with people who are sick.
    • Avoid touching your eyes, nose, and mouth.
    • Stay home when you are sick.
    • Cover your cough or sneeze with a tissue, then throw the tissue in the trash.
    • Clean and disinfect frequently touched objects and surfaces using a regular household cleaning spray or wipe.
    • Follow CDC’s recommendations for using a facemask.
      • CDC does not recommend that people who are well wear a facemask to protect themselves from respiratory diseases, including COVID-19.
      • Facemasks should be used by people who show symptoms of COVID-19 to help prevent the spread of the disease to  others. The use of facemasks is also crucial for  and  (at home or in a health care facility).
    • Wash your hands often with soap and water for at least 20 seconds, especially after going to the bathroom; before eating; and after blowing your nose, coughing, or sneezing.
      • If soap and water are not readily available, use an alcohol-based hand sanitizer with at least 60% alcohol. For information about handwashing, see  website.

    For information specific to healthcare, see .

    凯时手机版appThese are everyday habits that can help prevent the spread of several viruses. CDC does have .

  • 凯时手机版app Caregivers and Household Members

    凯时手机版appIt is important that caregivers and household members take all necessary precautions to avoid the risk of contracting COVID-19 and spreading the illness to someone with a neuromuscular disease. We recommend that neuromuscular patients and caregivers work together to identify a backup caregiver who will be able to provide care for the neuromuscular patient in the event that the caregiver gets sick. In addition to the preventative measures listed above, caregivers should also wash their hands or use hand sanitizer before and after providing care (such as feeding, bathing, and dressing) to help decrease the risk of exposure for the patient.

    The CDC website lists additional precautions for .

  • 凯时手机版app Additional Resources

    • WHO  when and how to use a Facemask 
    •  from the CDC
    • COVID-19  from the CDC
    •  from the CDC
    •  your health 
    • World Health Organization (WHO) Covid-19 

General Information



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